Previous Events

Previous Events

A Celebration for Veronica

We want to thank each and every one of you for all the love and support through the most difficult time of our lives. We’ve read every note and deeply appreciate every word. We are stronger than we’d imagined and it is in large part because our friends and family. Each day holds its challenges but we are getting through it.

We celebrated the brief and wonderful life of our beautiful daughter on Saturday, December 3rd, 2011 at 2pm. Thank you all for attending and for your love. The service was held at:

St. John’s Episcopal Church
1419 Pine Street
Boulder, CO 80302
303.442.5246


    Voyage for Veronica/Alpers AwarenessSaturday, July 28, 2012 11:00 AM - 2:00 PM


    Last November, 2011, we lost our 16-month old daughter, Veronica, to Alpers Syndrome. Alpers is a recessive genetic illness that effects how the body produces energy. There is no cure. It leads to mental deterioration, liver and respiratory failure, blindness, and death. It is believed that 1 in 110 Americans are carriers, putting the birthrate at around 1 in 50,000.

    We are holding a small, very casual walk-bicycle-tricycle-stroller fundraising event to promote and raise Alpers Awareness - and to honor what would have been Veronica's 2nd Birthday. We are also pleased to announce that joining us for the event will be the new curbside cuisine sensation, Go Purple Bus! Kids from zero to 100 will love them! Go Purple Bus!The suggested donation is $10/person or $25/family. It will include aid stations along the route, lunch afterwards, and miscellaeous swag. Every penny raised goes directly to helping Alpers kids and families.

    A big thank you is due to all the volunteers and sponsors, specifically GoPurpleBus, LARABAR, Izze/Snikiddy, Earth Wind and Rider, and CocaCola/Powerade.

    Please subscribe to our Alpers Awareness/Veronica's Voyage Newsletter or check back for more details.

    Autumn Ash Park, City of Lafayette
    401 West Lucerne Drive
    Lafayette, CO 80026

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    For more information, please contact Marc at marc@alpersawareness.org.


    Mito Awareness DaySaturday, September 29, 2012 10:00 AM - 2:00 PM


    Agenda

    10:00-11:00 Time to meet with other Mito families
    11:00-11:30 Miracles for Mito Update
    11:30-12:30 Lunch; Results from Mito Clinic Survey, Emily Todd, MD, Children’s Hospital Colorado
    12:30-2:00 Guest Speaker from Mitochondrial Clinic, Children’s Hospital Colorado, Dr. Johan VanHove, MD will speak on Mitochondrial Diagnosis and Research.

    Nursing Care for Mito Kids Activities for Mito Siblings Lunch will be provided, and we will need to plan for nursing care, so please RSVP by September 14th to Maria Hopfgarten.

    The Anchor Center for Blind Children
    2550 Roslyn Street
    Denver, CO 80238

    Event Details View Map

    For more information, please contact Maria Hopfgarten at mhopfgarten@gmail.com.


    The Griffin and Logan Chill Benefit & Golf TournamentMonday, October 22, 2012 8:00 AM - 10:00 PM


    Please help support Karlee and Jeff Chill as they go through a trial that no parent should have to face. But they are not doing it alone. Their friends and family are doing everything possible to surround them and lift them up with support and love. In this vein, they are putting together an event - a Golf Tournament and Evening Out on Monday, October 22nd, 2012. The event will include a silent and live auction, a wine pull, and raffle. They are raising money that will hopefully help with the expenses the Chills are facing.

    Please help this wonderful family by attending or donating.

    The Greens Country Club
    13100 Green Valley Drive
    Oklahoma City, OK 73120

    Event Details View Map

    For more information, please contact Ainslee Crum at GriffinLoganChill@gmail.com.


    The 2nd Annual Veronica Classic for Alpers AwarenessSunday, August 11, 2013 9:30 AM - 1:00 PM


    ​In November, 2011, we tragically lost our 16-month old daughter, Veronica to Alpers Syndrome. Alpers is a recessive genetic illness that effects how the body produces energy. There is no cure. It leads to mental deterioration, liver and respiratory failure, blindness, and death. It is believed that 1 in 110 Americans are carriers, putting the birthrate at around 1 in 50,000. Sadly, this number will increase as more diagnoses occur.

    On Sunday, August 11th we are holding our 2nd Annual Veronica Classic for Alpers Awareness - a small, very casual walk-bicycle-tricycle-stroller fundraising event to promote and raise Alpers Awareness - and to honor what would have been Veronica's 3rd Birthday. It is an event for the very young, to give them a taste of what "grown-ups" do on the big, fancy supported rides! It includes aid stations along the route, lunch afterwards, miscellaneous swag, water balloons, face painting, and other activities. The suggested donation is $15/person or $35/family, but any amount - large or small - will be greatly appreciated. Every penny raised goes directly to helping Alpers kids and families.

    A big thank you is due to all the volunteers and sponsors, specifically LARABAR, Snikiddy, Earth Wind and Rider outdoor apparel, Vecchio's Bicicletteria, Stormer Web Hosting, and IZZE Beverage Company.

    Please subscribe to our Alpers Awareness/Veronica's Voyage Newsletter or check back for more details.

    Arapahoe Ridge Park, City of Erie
    Dickens Street and Hauck Street
    Erie, CO 80516

    View Map

    For more information, please contact Marc at marc@alpersawareness.org.


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