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Erica and Doug,
I wanted to inform you of the progress I’ve made at my hospital with your pamphlet on Veronica’s illness. Unity is an Allina hospital and 80% of the hospitals and clinics are owned by Allina here in Minnesota. I’ve posted the pamphlets in the Doctor’s lounges downstairs and have given the information to the nurses I work with. Nurses are always fascinated with some disease they have never heard about let alone many of the nurses are young parents like yourselves and really feel connected to your story. I’ve sent many people to the Alpers web site and hope to send more in the near future.
Tomorrow I’ll take the phamphlets upstairs to the ICU and the upstairs doctors lounge and post them. Of course I know the nurses and doctors there since I worked there 20 years until I went to PACU(Post anesthesia recovery). However, I am going to Florida for Christmas with sister-in-law, Sally Bowles, on the 20th and will return the 28th. After that I will talk with the Nursing Director about giving the information at what ever meetings I can attend in ICU. Usually, we can bring information to the entire staff at their monthly meetings. I printed off the picture of the 3 of you dancing together at Mark’s wedding. This actually had one young nurse crying because of how normal and happy you all were and like I said they identify with this family picture and can’t believe the horrific outcome a little recessive gene can cause. Let me know what you think.
Auntie Pam
I wanted to inform you of the progress I’ve made at my hospital with your pamphlet on Veronica’s illness. Unity is an Allina hospital and 80% of the hospitals and clinics are owned by Allina here in Minnesota. I’ve posted the pamphlets in the Doctor’s lounges downstairs and have given the information to the nurses I work with. Nurses are always fascinated with some disease they have never heard about let alone many of the nurses are young parents like yourselves and really feel connected to your story. I’ve sent many people to the Alpers web site and hope to send more in the near future.
Tomorrow I’ll take the phamphlets upstairs to the ICU and the upstairs doctors lounge and post them. Of course I know the nurses and doctors there since I worked there 20 years until I went to PACU(Post anesthesia recovery). However, I am going to Florida for Christmas with sister-in-law, Sally Bowles, on the 20th and will return the 28th. After that I will talk with the Nursing Director about giving the information at what ever meetings I can attend in ICU. Usually, we can bring information to the entire staff at their monthly meetings. I printed off the picture of the 3 of you dancing together at Mark’s wedding. This actually had one young nurse crying because of how normal and happy you all were and like I said they identify with this family picture and can’t believe the horrific outcome a little recessive gene can cause. Let me know what you think.
Auntie Pam






